About Me and the Purpose of this Blog

I was diagnosed with a rare genetic condition called Von Hippel Lindau when I was 11 years old. It has changed everything about my life. I started this blog partially because I needed an outlet for my thoughts and feelings and partially because I know what it is like to feel alone in the world. This disease has killed everyone in my paternal family and I have to navigate these uncharted waters on my own now...and that's an extremely lonely feeling (to which very few people can relate) so if this blog can help even one person feel as though someone else knows what they are going through, then I think it's worthwhile.

I am currently recovering from brain surgery but I still have many more tumors that will eventually need operating so if you take this web-journey with me, I promise to make it as entertaining and informative as possible.

Friday, March 20, 2015

Lessons from Childhood

The movie Cinderella was released last week and it got me thinking about female role models. In my opinion, Cinderella has a very bad message for girls (just do nothing about your shitty life and eventually a rich guy will come along and save you) and it got me thinking about positive influences in my youth.



As an adult, I've had moments where I don't get along with my mother but she and my father actually did a lot of of things that I think positively influenced my childhood. I don’t often talk about the things my parents did right but they helped shape the person I am now. Considering all the awfulness I’ve dealt with in my life and with my health, I consider myself to be fairly well adjusted as a human. While not all of my positive attributes can be traced back to my childhood, I had a pretty amazing foundation to build on. Here’s a few of the bricks in that foundation:
1.         Books at bedtime—Before I could read, my mom would read a book (or a chapter of a book) to me every night. When I was young it was several children’s books a night. As I got older it was a chapter or two of a more complicated book (I remember the Little House on the Prairie series and Black Beauty specifically…also there was a series where a boy had little toy cowboy and Indian that would come to life but I don’t remember what it was called, I think we also read The Jungle Book etc.). I think this was one of simplest things to a parent can do to impact their child’s adulthood. I love reading, part of the reason I love history is because I love reading. Because I love books, I have an ever-expanding vocabulary and pretty good knowledge of sentence structure so it has helped improve my writing profoundly.
2.         Spanking—Yeah, yeah I know it’s frowned upon these days but I was a spiteful little thing. I benefited from a small amount of fear in my parents. Even as a little kid I recall knowing full well that I usually deserved it. For the most part, I was well behaved, I had a very strong conscience back then but it helped me stay on the right track to know that if I stepped out of line, the paddle was waiting for me. Admittedly, there were times when I was getting hit that I would be thinking about how to better hide the infraction next time but my parents were pretty lenient if I fessed up to my misdeeds beforehand. Just to be clear, I don’t advocate pummeling your kid or punishment without cause but if you are consistent with spank-able offenses then the kid knows what to expect. There was almost never (I say almost because there were a few times that I felt were unjustified) a time when I was considering doing something bad that I didn’t first think, this action is probably gonna get me spanked and so I weighed my options appropriately.
3.         Not dumbing things down—I guess this might seem counter-intuitive because, as an adult, you want to be understood but when you explain complicated things to kids (and are careful not to condescend or be dismissive if they ask a lot of questions) you are asking them to rise. By expecting a lot from them you get amazing results. I knew my parents tried to challenge me intellectually (they didn’t dumb down words or concepts) and so I tried to meet their expectations. Consequently, I probably had the best vocabulary in my elementary school and I was certainly the only child in my class that grasped the concepts of inflation or Darwinism. This maybe had a slight repercussion—I really hated other kids. I was so used to being spoken to like an adult that when I would try to talk to classmates, the way I was expected to speak at home, and I did not get responded to adequately I would get pretty annoyed. I didn’t really socialize much ‘til college.
4.         To be the calm one in a situation—I don’t know if this is so much a concept my parents tried to instill in me but it was a lesson they taught me nonetheless. They used to fight like cats and dogs when I was young: over big matters like whether should I be raised with a predetermined religion, to daily minutia like what we should have for dinner. If ever there were two people who different from each other in every way, it was them but I did learn an invaluable lesson from that: listen, digest, and compromise. To react emotionally and irrationally is not good for either party. Even when the other person is screaming, it is best to keep your temper in check because when you are yelling and escalating, your point can’t be understood and if you have to say what you mean so emphatically, you’re probably wrong anyway. Like I said, I didn’t socialize much but I would have been a good peer counselor if I were more extroverted.
5.         Be what you want to be—This definitely had the biggest impact on how I viewed the world. There was never a moment in my youth in which I hesitated to do anything the boys were doing just because I was a girl. I got muddy; I played with GI Joes; I jumped fences…there were no preconceived notions of gender roles in my home. Equality in every single possible way, this was the only way I knew things to be. I remember when I was about 6 years old, getting a lecture from my dad’s youngest brother “don’t you EVER let a man tell you that you have to do something. If you do anything, it is because you want to do it. Any man that bosses you around or puts you down is not a man worthwhile.” (now mind you, I was only 6, so I didn’t have a great grasp on the statement he was trying to make there but I got the general Girl Power gist and as I got older it stuck with me and meant more to me as the years went by). I grew up with no concept of a glass ceiling (although there may be one in reality, it was a very positive way to view life in those formative years).
6.         Treat everyone like family—This was meant to be both very specific and very broad. Specifically, if we ever had any guests, whether I liked them or not, they were to feel welcomed and treated like my cousins (this was one of those spank-able offenses I mentioned). Keep in mind that I didn’t relate well to kids so this was harder for me than it sounds. Broadly, it was used mostly by my mom to explain that we, as people, are all equal. She used to say, all the time, that I was extremely mixed, the personified blending of many cultures and nationalities and we had no way of knowing what kind of leaves were in our family tree “so never start thinking that you are better than anyone else based on race or background because it is very possible you have that very same blood in you.” So I grew up in household that did not allow a hint of racism or even acknowledge it at all and I went to school and lived in a very ethnically diverse community. I think my parents were shooting for me to be color blind so to speak and they pretty effectively achieved that goal. I thought racism wasn’t a real thing because I didn’t ever see any until I became politically aware in college… Then I realized it is really a rampant issue but I think my parents did a wonderful job of neutralizing this so that, as an adult, I just see people as people, not a skin color.
7.         Don’t be a jerk—There is really very little to explain here. It was put to me like this when I was young “Don’t ever put yourself in the position where you are going to be the bad guy in someone’s story.”

My parents did a lot of things that were wrong too, every parent does. I am sure the worst nightmare of parents everywhere is that they will fuck up this little life in some irreparable way but despite everything, despite losing my father and my family and having the same disease I know killed them all, I still function pretty normally. In another reality, maybe if they had done things a little differently, I would be a drug addict or dead so I have to give them their props where it’s due. I had a wonderful childhood (life didn’t start to get hard until I was in my teens) and think that these are some of the reason why.

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